That face is so perfect……….so precious…………. so inspiring.
Today I took Ashley to the dentist. The dentist that I visit as little much as I possibly can. The receptionist there is a sweet older lady who always asked about Emily. She knew that Emily has a genetic disorder, it was one of those things we chatted about while I was waiting to have my teeth poked and proded nicely worked on.
Today was the first time she had a chance to meet Emily. I don’t usually bring her to my own appointments, but since it was Ashley’s turn in the chair, we all went together.
After trying to say hello to Emily with no response, the receptionist lady asked me, “What does she have again?” I nicely explained again that Emily has a very rare chromosome disorder. One of her chromosomes…. #17 to be exact has a tiny section missing and that little missing part has caused severe developmental delays, seizure disorder, hypotonia [low muscle tone] and a scurry of other developmental/physical/mental problems.
“Well she looks normal,” she responded.
I had no response….but just a little smile.
How do you respond to that? I’m sure it was said with the best intentions. Are we “lucky” that she appears normal looking when underneath there is a lot more going on than meets the eye?
I know one thing for sure. God did not make a mistake when he gave us this precious little girl. So for that, I thank Him. I thank Him for those moments when I sit with no response and a little smile.
I thank Him for choosing us. Amen.